Why I Wrote Pink a Letter & Sent It to the Grammy® Awards With a 30Seconds Contributor Make a Difference Motherhood

My friend Morgan won a trip to the Grammy® Awards. I was excited for her and also excited that Pink would be there. Pink’s song “What About Us” spoke my thoughts every time I shared my son’s story with a doctor, teacher or politician. My son has PANDAS/Pediatric Autoimmune Neuropsychiatric Disorder Associated with Strep, or PANS. “What about Us” echoes our plight:

• We are problems that want to be solved. There’s no cure.
• We are children that need to be loved. PANS/PANDAS affects one out of 200 kids.
• What about all the times you said you had the answers? Kids are misdiagnosed with OCD, Bipolar and more.
• What about all the broken happy ever afters? What about all the plans that ended in disaster? Kids have nightmares and delusions. Parents quit jobs, go bankrupt, lose homes.

As concerned parents we formed a nonprofit, PANS Research and Advocacy Initiative. Would Pink let us use her song as our anthem? My heart went into my note. I delivered it to my friend in a pink envelope. She carried my heart with her to the Grammy® Awards.

My note may not have gotten to Pink, but my heart made it to the Grammys. I’m forever grateful to Morgan for her act of friendship, and to Pink, too, for her song.