Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Symptoms & Helpful Resources for ME/CFS Sufferers by Carmen Goodwin

6 years ago

Millions of people worldwide suffer from ME/CFS. According to the National Institutes of Health, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a "complex, multifaceted disorder characterized by extreme fatigue and a host of other symptoms that can worsen after physical or mental activity, but do not improve with rest." Here are some symptoms of ME/CFS: 

  • recurring throat ache
  • swollen lymph nodes
  • extreme tiredness
  • tinnitus
  • hypersensitivity to bright lights
  • hypersensitivity to loud noises
  • problems with balance
  • feeling feverish, night sweats, hypersensitivity to temperature extremes
  • non-refreshing sleep/sleep disturbances
  • post-exertional malaise, symptom exacerbation
  • visual or reading fatigue, difficulty focusing on images
  • short-term memory difficulties
  • ongoing flu-like malaise

Here are more resources for ME/CFS:

  • For more information about ME/CFS and its symptoms, visit the ME Association
  • A dedicated team of researchers in the U.S. founded the Open Medicine Foundation, where you can learn even more.  
  • Netflix has released a movie made by Jennifer Brea called "Unrest" (Shella Films). Brea, a ME/CFS sufferer, filmed her journey and struggles and has since then been an amazing advocate for the powerful movement, #MillionsMissing.

This video is longer than 30 seconds, but we think it's worth it. 

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Nicole DeAvilla
I have never heard of this disorder. Sounds like a difficult one to deal with. Thanks for the information and sharing resources Carmen Goodwin . Welcome to #30Seconds!
Carmen Goodwin
Thank you for your comment, Nicole.i am so excited to be contributing on here :) ME is quite complex and a life changing illness.i am so glad i can raise more awareness, thank you so much for taking the time to read my first tip :)
Ann Marie Patitucci
Carmen, thank you for raising awareness. I have no doubt that you are going to inform so many people and help ME sufferers find community! Welcome to our 30Seconds tribe!
Carmen Goodwin
Thank you so much for your support, i am really excited about the community :)
Gina Pomering
I know a lot about chronic illness but I have seen this video and it makes me so sad. I feel like this on days but I have no idea what it could be and it really seems as tho something is perpetuating this for her, meaning it’s gets progressively worse. I hope they continue to study and learn more. Such an amazing story to share.

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